Personal essay · 5 min read
Sitting with Snakes
At two in the morning in Monterey, my father invites me into a hallucination. What he wants isn't correction. It's company.
Insights
Notes from inside memory care
What I'm learning from families, care staff, and community leaders across Colorado and California, written for anyone who loves someone with dementia or works to care for them.
Ideas I work from
Three things I believe about memory care
01
Quality of care and experience of care are not the same thing.
A community can do almost everything right clinically and still leave a family feeling shut out. Closing that gap is where trust lives.
02
Data tells families what happened. People tell them what it means.
Sensors and charting can report a fall or a restless night. Only a person can explain what it means for someone you love, and what comes next.
03
The gap shows up where perspectives split.
Executive directors, care staff, and families often describe the same community very differently. My research looks for exactly where those views diverge.
Latest
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Research in progress
Your experience can shape what families are told
I'm gathering experiences from families, caregivers, and care teams for the first Family Experience Benchmark Report. It takes about 5 minutes, it's anonymous, and everyone who takes part gets the findings free.